Tuesday, March 10, 2009

Mary Grace went to see Dr. Edell (pediatric pulmonary specialist in NO) yesterday at Children's Hospital in New Orleans. It was just a doctors appointment to schedule the test MG will need to move this process forward. She will have the long awaited lung function test in April. Once again we are waiting on scheduling issues. MG will see Dr. Thomas (pediatric pulmonary specialist in BR) this Thursday and he has to schedule a test for her also. The lung function test can only be performed at Children's Hospital and the test with Dr. Thomas can only be performed in BR at The Lake. So, we are left a little frustrated and running out of patience. But, the good thing is the doctors say that MG has the band aid to help assist her with the lung issues for now which is the oxygen while we wait for these test. Dr. Edell and Dr. Thomas say that these two test will tell them both what they need to know to diagnose MG. She is doing pretty good. Katie and Joe have learned how to manage MG's oxygen pretty well. They could easily put MD behind their name when it comes to the lungs. I will update the blog again after her appointment with Dr. Thomas Thursday. Please continue to pray for Katie, Joe and Mary Grace. I do think we are closer to finding out a diagnosis for MG. The doctors keep calling her a pulmonary puzzle, but she is OUR pulmonary puzzle and we will not stop until we put the pieces together.

Janna

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