Mary Grace went to her neurologist appointment Tuesday. Katie really like the doctor and felt very comfortable with her. The neurologist has scheduled to run a few test next week on Mary Grace to rule out any neurological problems. The doctor told Katie that this is routine and these are the first test the run on many patients. MG will have a EKG on Tuesday and a MRI on Wednesday. MG will have to be put to sleep for the MRI and these test will be run at either Woman's Hospital or The Lake. MG is doing pretty good. She is not having to rely on oxygen as often as before. We are still waiting on the lung function test that will take place in April. The neurologist did explain to Katie that when you deal with pediatrics that it is a long process. The doctors have to run every test possibly to come to a diagnosis. The problem is that the doctors have to go by what the parents describe to them as symptoms. They don't have a patient who can tell them exactly how they are feeling or what is going on. Katie did relax a bit with hearing that information. The doctors do keep saying that MG is a unique case but they will get to a diagnosis. Katie was also told that MG is seeing the best doctors in this area. They are all highly respected in their field. Please continue to keep Katie, Joe and Mary Grace in your prayers. Sometimes the hardest thing is having patience and that is all they can do for now.

Janna