Mary Grace is home. The doctor released them around noon today. They got the test results back from the test on Tuesday and it revealed that the problem they thought Mary Grace had was not it. She is not asperiating acid into her lungs from the reflux. At this point, the doctor's are not sure what is causing Mary Grace to have the problems she is having. There are a few more test for her to go through but Katie and Joe are not sure when she will have them. The doctor is trying to schedule them as soon as possible. Katie, Joe, and Mary Grace are so happy to be home. Mary Grace still has some unanswered symptoms but Katie and Joe are very confident that her doctor is going to get them some answeres as soon as he can. Please keep them in your prayers because they are still traveling a down a scary and stressful road and not sure when it may end. We Love YOU, Mary Grace!!

**Nanny

Wednesday, January 28, 2009

Today has been a very imformative day for Mary Grace. First, she had a rough night last night. Her oxygen dropped to 83% ( normally it should be 96% -100%) and her hear rate went to 151 beats per minute (normally it should be between 90-100). A respiratory therapist came in and gave Mary Grace oxygen for the rest of the night while she slept. Katie said that was not fun! At 5am this morning, Mary Grace's oxygen had gone back to about 98%, which is great. She had her second procedure at 9:30 this morning. This procedure went well and came back normal. The pulimary specialist came in after he read the second procedure results and meet with Katie and Joe. He basically told them that Mary Grace would not be allowed to go home until they get her oxygen and breathing stable and they get the test results back from the procedure yesterday. So, they will be residents of Children's Hospital for a few more nights. He also told them that he is waiting on the test results of the procedure from yesterday to confirm that Mary Grace is asperiating the acid into her lungs. He is expecting those results back tomorrow afternoon or Friday morning. The doctor is saying that he thinks they can control the asperiating with the right medication. Katie and Joe are doing well considering the stress of having a 1 year old baby in the hospital with an IV. Mary Grace is a little grumpy. Katie said the nurses gave her a sponge bath this afternoon and changed her pajamas. Please keep Mary Grace, Katie, and Joe in your prayers. Hopefully they will be able to come home by Friday. I will update as Katie gives me new information.

-Nanny (Aunt Janna)

Since Katie will be unable to post anything for the next two days, she has asked that I keep you all updated on Mary Grace. Mary Grace is finished with her first test that was done today around 2:30 and she's been sleeping most of the day. Her oxygen level are a little low, but she is doing well. Katie and Joe haven't gotten any answers yet from the Doctor. Mary Grace is one tough little cookie!!! Please keep her in your prayers and thank you for checking in on her! I'll update the blog as soon as I know anything new.

-Aunt Kacey

Hello everyone,

Mary Grace has a big day! We will be admitted at Children's Hospital at 11:00 am today. She will have a test today at 2:30. Where they will go in and take look at her lungs and take a sample of the fluids in her lungs. Dr. Edell will let us know what he saw in her lungs but we will not know the results until Friday! Then we they are doing a test Wednesday morning to see if she has any blockages in her lungs! We will have 2 long days! Please keep our little angel in your prayers !Mary Grace has been down a long rode and now she might be at the end! Thanks for everything! We are so blessed to have Mary Grace...THANK YOU JESUS! She has been such a little tropper through everything! She never stopped smiling to sharing her binky with the doctors!

Please keep Mary Grace in your prayers!

Mary Grace first Day at Children's Hospital

Well as you all know Mary Grace has been down a long rode with Acid Reflux. For 3 months now Mary Grace has been having some heavy breathing which we have been on breathing treatments for. Which they never helped!! So her Pediatrician, Dr. Bankston had decided to send her to a Pediatric Pulmonary Specialist at Children's Hospital on Friday Jan 23, 2008. We are on our way to Children's Hospital for our appointment with Dr. Edell.We get there knowing Mary Grace is breathing fast. Which she was 65 breaths a minute ( it should be 30 to 32 a minute)and her oxygen level is at 94% (which should be at 96% and above). So they tell us that she can't go home because her statics are to low. First they want to start checking any heart problems off the list. We are sent to the Cardiology center at Children's Hospital to have a EKG and Echocardiogram. This point Joe and I are kinda worried until Dr.Ascuitto a Pediatric Cardiologist take a look at her test results and comes in. He tells us Mary Grace's has a wonderful heart! Joe and I both had smiles on our FACES!!! Thank you JESUS!!! BUT Mary Grace's oxygen level had dropped to 92% at this point and her breath per minute still in the 60s. So they tell us that to go back and see Dr. Edell that this is a lung problem. We get back to Dr. Edell and he then tells us that he thinks Mary Grace has 1 of two things....1 is that she is aspirating in the lungs which means whens she reflexes it is backing up in her lungs. You can aspirate two ways and they called it Up and Down. Most kids who have this they only have one of the two either up or down. Mary Grace is aspirating up and down both ways. He said in the 22 years of practicing he has not seen a case like this. If we let this persist it can damage her lungs which is not a good thing. Number 2 is that she could have something called a Stiff Lung. Which is not a good thing but Dr. Edell says that is like 25% she has that. So now we are at home watching little Mary Grace close and waiting on Tuesday for Test that will be run. We will check in at Children Hospital to have some test ran on her lungs on Tuesday and Wednesday! Then we will have more answers!