Mary Grace had some test ran around 11am this morning. The doctors ran a CST test that involved putting Mary Grace to sleep and took pictures of her lungs to see if they are functioning correctly. She did great and came out of the anestesia like a champ. We will not know any of the test results until Dr. Thomas comes by this afternoon and updates Katie and Joe with the results. She is sleeping right now with her MaMae. Hopefully, we will be headed for a homecoming soon and finding out the rest of the pieces to Mary Grace's lung puzzle. I will update hopefully tonight after Katie and Joe are updated by Dr. Thomas. Please continue to keep them in your prayers.

Janna

Mary Grace and her Nanny!

Mary Grace had another day of struggles. She has now developed signs of pneumonia and a respiratory therapist has been coming in today to give her breathing treatments. The doctors are going to start running the test in the morning to determine which of the three diagnosis they are looking for. Mary Grace will be put to sleep and the doctors will run as many test as possible because they only want to put her to sleep one time because of her lungs and oxygen. We still are not sure when she can come home. The doctors are not even talking about that. They just want to get the ball rolling on getting the correct diagnosis to be able to treat her appropriately. She still has a long road to go but at least we are on the right road now. She is still as cute as can be. Katie and Joe just wanted me to let everyone know how lucky they are to have such great family and friends. Please continue to pray for Katie, Joe and Mary Grace.

Janna

We finally have some news! Dr. Thomas a pediatric pulmonary specialist in Baton Rouge saw Mary Grace yesterday and gave us some insight to what might be going on with our little angel. He seems to think it is one of three things. Out of the three, all of them will not alter her life by any means.She will have these problems for the rest of her life but it can be treated with medication. She will have some more testing to do to confirm which one of the three Dr. Thomas thinks it may be. He said that she may not be a great track star when she is in high school due to the lung issues but she will be just fine. She may even have to sleep with oxygen at night for a long time but she will live a normal, healthy life. Katie and Joe are feeling some relief but they will not be completely satisfied until the test results come back and they know which one of the three they are dealing with. The doctor did say Mary Grace does not have RSV, but she does have a little virus and they can not do the test until she gets rid of the virus. We are hoping they can start the test as soon as possible. We are not sure yet if she will be coming home until the virus runs its course or if they will keep her in the hospital and run the test as soon as they can. I will update again as soon as I get new information from Katie. The continued support and prayers mean so much to Katie and Joe. They really appreciate all the love and care everyone has given them. We are finally on a road to some answers to get our baby girl well.

Mary Grace is still at the Lady of the Lake Hospital as of today. Dr. Eidell will be transporting her to Children's Hospital in the morning. He will evaluate Mary Grace to determine if she can still have the lung function test tomorrow. Mary Grace is still on oxygen and can not be taken off. Her stats still fluxerate and are not steady. A respiratory therapist saw Mary Grace this morning and tested her for RSV. We are waiting for those test results to come back. Even if Mary Grace has RSV, the doctors say it has to run its course and it will not change anything. She will just have RSV in addition to the lung problems. As of now, we are not sure when Mary Grace will be able to come home. Her pediatric pulmonary specialist said he can not perform the lung function test if she is still on oxygen. She has to be put to sleep with the test and he does not want to do that with the oxygen problems she is having. This is a hard decision to make considering Mary Grace has been waiting on this test since the beginning of January. There are only three machines in the United States that perform this test. This is one of the most severe oxygen decreases Mary Grace has experienced. Her doctors feel that they are closer to finding out what is wrong with more pieces to the puzzle being exposed. I will post more information as I receive it from Katie. Please continue to keep Katie, Joe, and Mary Grace in your prayers.

Mary Grace was admitted into Lady of the Lake Hospital last night. Her oxygen dropped around 9:00 pm and Joe and Kaite called her pedriatric pulminologist to let him know. He told them to take her to the Lake because they could not get to Children's Hospital due to Mardi Gras traffic. Katie and Joe got to the ER at the Lake and was admitted around 1:00am into a room. Mary Grace is still there. Her oxygen doesn't want to keep stable and her pediatrician doesn't want to send her home. Mary Grace is scheduled to have the lung function test at Children's Hospital this Thursday and we are praying that it will give us the answers we are looking for. Mary Grace will probably be discharged from the Lake tomorrow and Katie and Joe will drive her to Children's Hospital where they will admit her for the test on Tuesday. Katie and Joe feel really secure that the doctors are one step closer to finding out what is causing Mary Grace so much trouble with her oxygen. All the test that have been run so far have all come back negative. We are really thankful for that. Please keep Mary Grace, Joe and Katie in your prayers. I will update the blog as I new information from Katie. I spend all day with her at the Lake today and she is still the happiest baby to be in the hospital and having the oxygen problems she is having. We thank everyone for their continued support and loving concern for our sweet baby girl.

Janna

Hello Everyone! Mary Grace was admitted in Children's Hospital yesterday afternoon by her doctors. She was dehydrated because of bowel movement issues. She was given an IV with fluids and is feeling much better. The doctors (pedriatric pulminary specialist and pedriatric gastrologist) are running some new test today. They want to check for anemia, thyroid problems, and cycstic fibrosis. The doctors just want to rule these things out. Katie and Joe says they are not leaving the hospital this time without a diagnosis and cure for whatever Mary Grace is going through. Please keep Katie, Joe, and Mary Grace in your prayers. Please also pray that the doctors find out what is wrong with out little angel and fix her as soon as possible. I will post new information as I get it.

Thank you for all your prayers
and support,
Janna

Hello everyone! Well Mary Grace is doing great! Her oxygen level was at 98% on Friday in the doctor's office! Thank you Jesus for answering our prayers! We got a great report on Mary Grace. The doctor said he did not seem to think she had a structure problem in the lungs! He did put her on monitors at home for the breathing patterns and oxygen levels. He just wants to see how she is doing while she is sleeping. The monitors record her levels at a constant rate. Then we will go have them downloaded and he can have a report to help him diagnose her. We are getting admitted in Children's Hospital tomorrow at 4:00pm. He wants to do a sleep study test on her ! They will do all the test while she sleeps through the night and then they will release us Wednesday morning! The test results will not be in until Thursday! Mary Grace is being a little angel through all of this! She loves her doctors and nurses! We are so blessed to have such a wonderful crew at Children's in New Orleans! Please continue to pray for us and that will find out what is wrong with our little girl. I am sorry if I have not returned any phone calls. Mary Grace has been a little bit of a mommy's baby. Thank you for everything! Thanks for all the sweet comments. We love to get comments on here. It is so nice to know that so many people care! I will post when i know more!


Katie

This has been a long hard weekend! I am sorry i have not updated the blog! We have no new information. We are still waiting to get some more test scheduled! We have a doctors appointment with Dr. Edell Friday. We will talk about some more test we can do to get us closer finding out what is wrong with our little angel. Joe and I just want to thank everyone for the prayers and thoughts. We are very confident that our Lord Jesus Christ is with us every step of the way and he is guiding us! The doctors will find out what is wrong with her! She is in great spirits and smiles all the time! I will post any new information we get!

Thanks
The Amorello Family